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Focus On Love And Care

Caring for someone at the end of his/her life is a challenging experience. Focus on making the situation a loving and calm one for you and your care recipient.

Involve your care recipient as much as possible when deciding how to manage the end of his / her life. Your care recipient has the right to decide how to live his/her last days.


How Long Does This Stage Of Care Last?

End-of-life care can last between days and months. Each person’s situation is different, and your healthcare professional will be able to give you more information about this.

Whatever the length of end-of-life care, it is an important time for your family and care recipient, and you will be:
  • Helping your care recipient stay comfortable and safe during his / her last days 
  • Supporting your loved one in his / her financial and legal matters 
  • Coping with your own feelings and the feelings of your family 
  • Cherishing your last moments with your care recipient

End-Of-Life Care Options

There are three options you can choose from for end-of-life care:
  • Home Hospice Service
  • Hospice Day Care Centre
  • Inpatient Hospice Care
  • Ask yourself these questions when you consider caring for your loved one:
  • Has your care recipient expressed his/her wish to remain at home at the end of life?
  • Do you have reliable, 24-hour support at home, or do you need additional help?
  • s there space for a hospital bed or special bed and wheelchair in your home?
  • How will you transport your loved one for everyday needs and emergencies?
  • Can you lift, turn and move your care recipient? If you are not home, can someone else do it?
  • What can you afford?

The Importance Of Early Preparation

The end-of-life stage is easier to manage when you discuss what to expect.
  1. Ask your care recipient about his / her wishes: Your loved one may have special end-of-life wishes and religious practices. You can help your care recipient at this stage through Advance Care Planning
  2. Manage financial and legal matters: Ask your care recipient to consider drawing up documents such as a will, Lasting Power of Attorney and Advance Medical Directive. These will help your care recipient to ensure that his/ her wishes are carried out. It will also help your care recipient feel secure in his/ her financial matters because his/ her estate (savings, property, other valuable items) are given to the intended people and causes
  3. Be open and honest about family problems: The stress of seeing a loved one suffer can lead to family disagreements. Talk about your problems honestly and ask a doctor or social worker to help you if you need it.
  4. Keep records: Keep track of changes in your care recipient’s health and emotions. This could be useful when talking to healthcare professionals and handling legal matters.

Create A Peaceful And Loving Environment

Whether you choose Home Hospice Service, Hospice Day Care or Inpatient Hospice Care, create a peaceful and loving environment for your care recipient.

Limit family disagreements and spend time chatting and having fun together. Your care recipient may not feel like eating. That is okay. Just keep him/ her comfortable.

Sometimes, your care recipient may not want to talk. Just sit with him/ her in silence. If your care recipient wants to talk, listen to him/ her. Share good memories with each other and laugh about funny moments.


Be Aware Of Your Own Needs

Caregiving at the end of life can stress you out, and you will become tired if you do not take a break.

Remember to care for your health by eating a balanced diet and taking time to exercise and relax. You and your family can try taking turns to care for your loved one.

You may have many mixed feelings. Your feelings are not wrong. They are a natural part of life. Here are some suggestions to deal with them.

FeelingExamplesHow to deal with it
Worried or anxious

What is going to happen? What if it's painful? What if something goes wrong?

 

Accept these feelings. It is okay to feel worried or to be anxious about things. Try to go ahead with everyday life. Worry is normal.
DenialMaybe the doctors are wrong. This cannot be happening.Express your feelings to a loved one or close friend. Just talking it out could help you to deal with the situation.

Bargaining

 

Maybe if I pray every day, she will get better.Explore your feelings. Think about how you feel and why you are trying to change things. If you feel any regrets, express them and try to let go of them.

Impatience

 

I wish his suffering will end quickly.

 

Enjoy the moments you have with your loved one, and focus on the present moment.

Guilt

 

What if it is all my fault? I should have forced her to go for treatment earlier.

 

It is okay to cry, or even laugh. Whatever you are feeling is acceptable. Talk to someone about your feelings.

Loneliness

 

My dad is my best friend. What will I do without him?Talk about your good times together and share the memories you want to cherish. Communicate with your loved one.

Emptiness

 

I do not know what to feel. I feel nothing. Maybe I am cold-hearted.Say to your departing one what is in your heart. It will help you to come to terms with the situation.

Self-pity

 

Life is so unfair. Everyone is happy but me.

 

Pray or meditate, or simply have a chat with a close friend or family member.

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End-of-Life Care
end of life care, palliative care, caregiving, death, grief
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Learn how to care for your loved one near the end.
end of life care, palliative care, caregiving, death, grief
Learn how to care for your loved one near the end.
End-of-Life Care